Monday, April 11, 2011

The dust has settled, now here are some details

It's taken a few days for the excitment of learning that I am going to run with Team Endurance, in the NYC Marathon this fall, to sink in.

I can't believe I just typed those words.

I wanted to share more information about NF, and The Children's Tumor Foundation.  I sent off a round of emails and letters today, and I do need to get a link to my fundraising page up on my blog sidebar.  I can't tell you how motivated I am to do this, for so many reasons.  I'm in the process of putting together a couple of LARGE giveaways, where you can donate as little as one dollar to enter, and 100% of donations will go to the foundation.

But just a few quick notes:
  • NF is the term for three distinct genetic disorders NF1, NF2 and Schwannomatosis. 
  • Each causes tumors to grow along nerves throughout the body, and can affect the development of bones and skin.
  • NF can lead to learning disabilities, blindness, deafness, broken bones and cancer.
  • NF affects 1 in every 3000 births
  • NF affects both sexes, and all races and ethnic groups equally.
  • There is currently no treatment, and no cure.


I have been fortunate in my life. 

I am so very happy, and lucky, to be able to do something like this.

Game On.

19 comments:

Amy said...

I love that you're doing this! I am so excited for you to run in the NYC marathon! Sounds like a great cause, too.

LB said...

my cousin, who is my same age, is affected by NF and now has pretty severe brain cancer, not sure if he is going to pull through it or not. i have thought about doing something with team endurance or livestrong in his honor. think of him when you are running with team endurance!

fancy nancy said...

This sounds like a great organization! Congrats!

Caratunk Girl said...

Wow Molly!! That is so awesome! I am way behind on reading blogs right now, but I am glad I caught this. Good for you, I am so stoked for you.

Christi said...

Please get that link up soon so I can donate!

Big Daddy Diesel said...

Good luck, doing a charity race has a different feel to it and better feel. I remember my very first Team Roll ride, it was for the Susan B Komen, it was super windy that day, and I remember one teammate saying "Holy cow, this sucks" and another teammate snapped back "the pain you are feeling right now is nothing compared to the people who have endure this horrible disease that we are riding for" Ever since I heard that, I always remember when I am out racing or riding for charity.

Copychic said...

Congrats! What a wonderful thing to run for. Good luck!

Wells L said...

Wow! Congrats!!! You'll be an amazing contribution to the team!

Jeff - DangleTheCarrot said...

Very cool Molly! Very very cool!

Colleen said...

What a great cause Molly! I have run a marathon as a charity runner and it makes the experience SO much different... in an absolutely amazing way!

kristen said...

This is so great. I'll support you 100%!

Evolving Through Running said...

Way to go Molly .... run with purpose!

Jill said...

So exiting!!

ajh said...

Sounds like a great cause.

Annie said...

So awesome!

Michelle said...

So excited for you to be running New York - and for such a great cause!

Tammy said...

Very exciting! I love seeing the passion that runners have. I ran my first 5K in October but have been hurt since November. Back to walking now but at least I am getting out there.

The Green Girl said...

I am so excited about this - you just don't know!

Steel Springs said...

This looks like a great cause!